this disease is so frustrating!

this disease is so frustrating!

i've had enough! though, 'enough' keeps growing.

i've had enough!  though, 'enough' keeps growing.

Wednesday, May 3, 2017

Do you ever get mixed feelings?

Why is it that good news can make us sad?
First, I got word from PA saying I would receive 62 hours of home health services per week. It was a long process, and I cried with relief when I got my wish. Life got a lot easier. Whew! But then I felt sad about needing the help in the first place.
More recently, I learned that the first ever treatment for progressive MS, Ocrevus, was approved and available soon. I've been hoping for years to find something to stop my abilities from declining. Again, relief that help is on its way! But I also feel sad that it's even necessary.
I guess I've found ways to pretend life is just fine. In some ways, it is. I have lots of love from friends and family. I have a beautiful home and lots of things I enjoy doing. I'm good at focusing on the positive. Sometimes things shake my reality. Physical care and advanced medicine are two things most 46-year-olds don't have to consider. I do.
We take the good with the bad. So it's okay to be happy and sad at the same time. It just feels odd.
Thanks for listening!

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