back to tysabri

well, the long awaited oral disease-modifying drug, gilenya, fell short for me. it is supposed to slow down MS progression. it may have slowed things but i've still felt slightly worsening symptoms.

i felt progression on tysabri as well, but it gave me a great benefit. from the 1st dose i had a healthy amount of energy. i was able to do 3 days of activities and feel fine after a good night's rest. it's been years since i could do that! even in the early years just after diagnosis, i would have to rest a full day after most activities; for instance, visiting a friend out of town. i was much more active then at 23 years. it was a noticeable difference though. i needed more recuperation than my pre-MS years. now, along came tysabri and my stamina was great! i had hoped gilenya might be better, but i'm back to needing to rest a full day after being out and about.

i really miss the energy boost i got from tysabri, so i'm going again. the monthly stick of the i.v. is not fun, but it was worth the benefits. so gilenya will go by the wayside. i'll have to wait a month between drugs. also, they're doing a study looking for some virus that many of us carry around without knowing. if i have it we can still go forward with caution. if i don't have it i'll know tysabri is less risky for me.

medicine is often a necessary evil. so we must be knowledgable about the drugs and about the way our body reacts to them. wish me luck! good luck to you too!