this disease is so frustrating!

this disease is so frustrating!

i've had enough! though, 'enough' keeps growing.

i've had enough!  though, 'enough' keeps growing.

Monday, January 31, 2011

orange is the new pink

this is the title of a new book coming out in march. my story is one of many in this compilation of stories by people with MS.

you can read about it at:
http://www.themsproject.com/ and
http://www.lainaturner.com/books/f-ms/
[look below right to click directly to links]

laina turner is trying to raise awareness for MS and i'm all for that!

Thursday, January 13, 2011

gilenya

well, i finally got it. the long awaited pill to modify multiple sclerosis. i had my 1st dose observation yesterday. at intervals over 6 hours they checked my blood pressure and heart rate and asked if i felt any changes. nope! felt the same from beginning to end. a noticeable difference was a slowed heart rate. this was a plus for me as my heart rate has been running 100 - 115 for a few years. now i'm between 80 & 90 which i believe is more common.

now i take a simple pill once a day. that pill will, by some chemical/biological magic, keep certain cells in my lymph nodes far away from the myelin that protects my nerves. the functioning nerves will remain functioning. there is also the possibility the previously damaged myelin could regenerate. this could improve my symptoms. we just have to wait and see.

there are possible negative side effects, which you can read about at http://www.gilenya.com/index.jsp. use caution, but this medication is the best option for me. good-bye progression!

good luck if you try! i like this quote:
You miss 100% of the shots you don't take. Take a shot! --Wayne Gretzky