Dr. Donald Barone, director of the MS Center of SJ:
“There are no words that take away the pain people experience as they see their physical functioning declining.” [MS Connection 2009 issue 4 p.6]
i couldn't have said it better.
this disease is so frustrating!
i've had enough! though, 'enough' keeps growing.
Sunday, February 21, 2010
Friday, February 5, 2010
improvement?
dare i write it…? could i actually have some improvement? i put it as a question out of fear that it’s not true. it is though. there is an exercise i do w/ my arms, my aide always does the left arm. a while back i could put my arm straight out in front of me and raise it toward my ear. a few months ago i couldn’t lift it, only hold it straight as my aide lifted. yesterday, i lifted it again! so yes, there is improvement. i am still having days when my right arm and hand are weaker than 6 months ago but not worse than 2 months ago. i think my decline has finally become a plateau! the 1st i believe since 2007! thank you God, Tysabri, my body.
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