this disease is so frustrating!

this disease is so frustrating!

i've had enough! though, 'enough' keeps growing.

i've had enough!  though, 'enough' keeps growing.

Saturday, July 18, 2009

distraction

during the past couple of months i've been putting my energy into artwork - photographs and 'paintbrush' pictures. these fun things keep me distracted enough that i don't sit around feeling sad about my disease. my therapist said that distraction can be stress reducing. so now, i'm hoping to continue artwork, but also get back to writing. stay tuned.

song

singing is something that usually lifts my spirit. some days i don't have the heart to sing, i'm so sad. then there are in-between days when i use singing to express my feelings. here is a song i sing to the tune of 'you are my sunshine':

you are my body, my only body
you make me happy when you behave
you work so hard dear, I love you for it
please don’t take my body away

the other lifetime, when I was walking
I walked wherever I did please
that time is gone now, & life is different
won’t you help me feel at ease?

every day now, I must try harder
to do the things my body needs
get enough rest, eat well, and exercise
all these things my body needs

you are my body, my only body
you make me happy when you behave
you work so hard dear, I love you for it
please don’t take my body away