i don't like this term. it sounds positive. i'm all for positive, but this has the wrong connotation.
i'm desperate to stop my progression. as the weeks go by, my weakness grows. it gets increasingly difficult to do everyday things. i still find lots of things to enjoy, so i'm not downhearted. i'm tired of the frustrations though.
hope you all are well.
this disease is so frustrating!

i've had enough! though, 'enough' keeps growing.

Saturday, May 9, 2009
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