this disease is so frustrating!

this disease is so frustrating!

i've had enough! though, 'enough' keeps growing.

i've had enough!  though, 'enough' keeps growing.

Tuesday, February 24, 2009

stress = fatigue

i shouldn't make medical recommendations, but here's something that helps me. when i have a stressful event coming up i start to think about fatigue. i know that i'll need to rest more and pace my activities. the other thing that helps is a short course of prednisone [oral steroid].

in 2004 i got married. half way through the day my body became alarmingly weak. i rested and made it through the day. when i returned from my honeymoon, i called my neurologist about the weakness. she said that if she'd known about the event she would have given me prednisone to help me maintain my strength and energy.

last week i moved from my family home to a fabulous new apartment. i called my neuro and got some prednisone. i've still had to pace myself and rest a lot, but i'm feeling strong and not completely exhausted. i should mention that after the prednisone wears off there is usually extra fatigue. so i plan for that as well.

good luck managing your own stress.